Living Well with Multiple Sclerosis

Welcome to Living Well with MS, the podcast from the Overcoming MS charity. In each episode, your host Geoff Allix explores a different aspect of the Overcoming MS Program in greater depth by talking with experts and people with MS about health lifestyle changes. New episodes are published on Wednesdays and feature interviews with scientists, neurologists, fitness specialists, diet experts, stress reduction professionals. The podcast also features inspirational, real-life stories from people with multiple sclerosis following the Overcoming MS program, about the challenges and victories of managing symptoms through lifestyle modification.

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Episodes

Wednesday May 03, 2023

Welcome to Season 5 of Living Well with MS, the Overcoming MS podcast where we explore all topics relating to living well with multiple sclerosis (MS). In this episode, we are pleased to welcome internationally renowned mindfulness expert, Professor Craig Hassed.  Watch this episode on our YouTube here. Keep reading for the key episode takeaways and Craig's bio.  Make sure you sign up to our newsletter to hear our latest tips and news about living a full and happy life with MS. And if you’re new to Overcoming MS, visit our introductory page to find out more about how we support people with MS.   Key Takeaways Improving mental health will have an anti-inflammatory effect on the body  2:40: “Improving our mental health and well-being and reducing our stress has an anti-inflammatory effect. High levels of stress, anger, hostility, and poor emotional health have a pro-inflammatory effect. This is very important for an inflammatory based condition, like MS. But also, if there are any symptoms that we're dealing with, the "bothersomeness" of various symptoms seems to be improved through the practice of meditation.”  Recordings are very helpful, but the ultimate goal is to meditate unguided  22:13 “It's very useful to get comfortable with knowing the practice, feeling like we're understanding it [and] having guidance for a while. To wean ourselves off [guided meditation], maybe revisit the guided practice every so often, if you feel you need a top up or reminder. But ultimately, you want to be independent, so that you take it anywhere you go.”  Visualising our bodies doing specific actions can aid in rehabilitation  40:01 “What happens when we imagine that physical action is that it stimulates the circuits in the brain that are associated with doing that action. If there's a blockage for getting the message through, it keeps knocking on the door, and stimulates either new growth to try and bridge that gap or to find another way of getting the message through. What they found in the research is that people rehabilitate faster, better and get more function back if they have the mental practice, as well as the physical physiotherapy rehabilitation.”  Professor Criag Hassed leads a 5-minute meditation at 46:15   Related Links Listen to episode S1E7 Building a Daily Meditation Practice featuring Craig Hassed: https://overcomingms.org/resource/podcast/s1-episode-7   Take Craig’s free Mindfulness courses on Future Learn:  Maintaining a Mindful Live: https://www.futurelearn.com/courses/mindfulness-life  Mindfulness for Wellbeing and Peak Performance: https://www.futurelearn.com/courses/mindfulness-wellbeing-performance  Practice guided meditations from Overcoming MS: https://overcomingms.org/resources/guided-meditation   Listen to Geoff’s guided walking meditation on Insight Timer: https://insighttimer.com/geoffallix    Don’t miss out Subscribe to this podcast and never miss an episode. You can catch any episode of Living Well with MS here or on your favorite podcast listening app. If you like Living Well with MS, please leave a 5-star review on Apple Podcasts or wherever you tune into the show. Feel free to share your comments and suggestions for future guests and episode topics by emailing podcast@overcomingms.org.  Make sure you also sign up to our newsletter to hear our latest tips and news about living a full and happy life with MS.   Support us  If you enjoy this podcast and want to support the ongoing work of Overcoming MS, you can leave a donation here.    Professor Craid Hassed's Bio Craig’s career Professor Craig Hassed OAM has worked with the Faculty of Medicine at Monash University since 1989 but now teaches in many faculties as coordinator of mindfulness programs across Monash and the Director of Education at the Monash Centre for Consciousness and Contemplative Studies (M3CS).   His teaching, research and clinical interests include mindfulness, mind-body medicine and lifestyle medicine. Craig has authored 120 papers in peer-reviewed journals and published 14 books and 17 book chapters.   He is regularly invited to speak and run courses in his native Australia and overseas in health, educational, government and corporate contexts. He is patron of Meditation Australia, a regular media commentator and co-authored the world’s two leading mindfulness massive open online courses in collaboration with Monash University and FutureLearn.   In 2019 Craig was awarded the Medal of the Order of Australia (OAM) for services to Medicine.  Craig and Overcoming MS  Craig has previously worked with Overcoming MS as a facilitator at Overcoming MS retreats. He also wrote a chapter in the Overcoming MS Handbook on ‘Meditation, mindfulness and the mind-body connection’. 

Wednesday Apr 19, 2023

Welcome to Season 5 of Living Well with MS, the Overcoming MS podcast where we explore all topics relating to living well with multiple sclerosis (MS). In this episode, we are pleased to welcome founder of ‘The MS Stage’, Megan Evans. Watch this episode on our YouTube here. Keep reading for the key episode takeaways and Megan's bio. Make sure you sign up to our newsletter to hear our latest tips and news about living a full and happy life with MS. And if you’re new to Overcoming MS, visit our introductory page to find out more about how we support people with MS. Megan's Bio: Megan’s background After a successful career as a Celebrity publicist followed by the founding of her own company, ‘The Well-Coiffed Closet’, Megan Evans led the charge as a personal wardrobe stylist and certified image consultant for over a decade in New York, Los Angeles, and Nashville - all while dealing with her own diagnosis of Multiple Sclerosis at the young age of 24. Megan’s passion for health and wellness Megan has guided her own path of healing by combining alternative medicine with traditional medicine and lots of mindfulness and spiritual practices in between. How ‘The MS Stage’ was created It wasn’t until January of 2022 that Megan connected to her true calling and created tools for herself and other women with MS to truly heal on a deeper level. Having grown up as an actress and modern dancer, Megan always knew that having a creative outlet was one of the most healing tools of all. ‘The MS Stage’ was developed as a different kind of healing support group, one based on Megan’s love of theatre and dance and her own experiences and knowledge learned over her 19-year journey with MS. It brings women from around the world together through dance, improvisational movement, meditation, storytelling, and mindfulness practices to commune with their symptoms, their bodies, and each other in a totally new way. Megan is passionate about helping women with MS feel empowered in mind, body, and spirit. Key Takeaways: Turn your symptoms into superpowers “I literally lead women down this path to turn their symptoms into their superpowers. It becomes really empowering and instead of it becoming a depressing journey with MS it becomes an empowering journey. They learn that MS can actually be a gift in their lives and it can send them down a new path of being really present in their lives and being true to themselves.” Movement can help you get in touch with your emotions “I choose songs for the group, and they move improvisationally. They let their body speak and move through them. Frustration gets to turn into ease, anger gets to turn into love [and] resistance turns into acceptance. It's a beautiful practice and it's really learning to get in touch with their emotions and learning to switch from the negative to the positive.” Positive self-talk is powerful “Our bodies listen and our cells listen, so if we're talking to them positively, giving them encouragement, they want to do well for us ... I have seen it, I've done it for myself and it happens with my students. It's incredible what is possible, because I think there's so much negative self-talk and a lot of anger.” Megan leads a guided meditation practice at 19:29 Related Links: Listeners get a 15% discount on all groups, mention Living Well with MS. Book a discovery call with 'The MS Stage'. Access a free 3-day Meditation Journey on 'The MS Stage' Instagram page. Try a guided meditation from Overcoming MS. Watch the Hope Reborn music video, featuring a dance sequence finale. Don’t miss out: Subscribe to this podcast and never miss an episode. You can catch any episode of Living Well with MS here or on your favorite podcast listening app. If you like Living Well with MS, please leave a 5-star review on Apple Podcasts or wherever you tune into the show. Feel free to share your comments and suggestions for future guests and episode topics by emailing podcast@overcomingms.org. Make sure you also sign up to our newsletter to hear our latest tips and news about living a full and happy life with MS. Support us: If you enjoy this podcast and want to support the ongoing work of Overcoming MS, you can leave a donation here.

Wednesday Apr 12, 2023

Welcome to Season 5 of Living Well with MS, the Overcoming MS podcast where we explore all topics relating to living well with multiple sclerosis. In this episode, we are sharing the highlights from our ‘Exercising at (or close to) home’ webinar with Overcoming MS Facilitator and qualified yoga teacher, Dr Véronique Gauthier-Simmons. Véronique speaks about the importance of exercise when you’re living with MS and how to make exercise a healthy habit that you’ll enjoy. This webinar was recorded in June 2020 as part of our Refresh with Overcoming MS webinar series. You can watch the whole webinar here or the podcast highlights on YouTube here.  Keep reading for the key episode takeaways and Veronique’s bio.  Make sure you sign up to our newsletter to hear our latest tips and news about living a full and happy life with multiple sclerosis. And if you’re new to Overcoming MS, visit our introductory page to find out more about how we support people with MS. Véronique’s bio: Véronique has been an Overcoming MS facilitator since the AMEX event in Brighton in 2017 and has since led the exercise sessions at several Overcoming MS retreats. She started yoga when she was diagnosed with relapsing remitting MS in 2000 at the age of 34. At the time, she was lecturing at University College Dublin while completing her PhD thesis. She was a heavy smoker then (though no longer), but also addicted to the gym – especially spinning and step aerobics! Véronique’s yoga qualifications Yoga was so beneficial for her that Véronique decided to become a teacher. She qualified in Hatha yoga (2009) and then in Yoga Therapy (2013). Together with her husband, she created Taming the Walrus, which is dedicated to encouraging people with chronic conditions to practice yoga. They now live in the South of Portugal. Véronique and Overcoming MS Véronique has followed the Overcoming MS Program since 2012 and has found that her health and fitness keep improving. Her exercise regime now also includes weight training, swimming and running. But she’s always open to trying new types of exercise. Key Takeaways: There are many benefits of exercise for people with MS 3:17 “When I was diagnosed 20 years ago, my neurologist advised me that exercise was bad for MS.  But, since then, there are loads of studies and research showing it's actually good for us, even if the symptoms come up when you exercise. Exercise is good to maintain and develop muscle strength. This has an impact on your mobility, your posture, [and] on daily activities. Exercise also helps to maintain walking speed and it has been proven that exercise increases your energy level.” If you struggle with fatigue, break your exercise down into manageable short sessions throughout the day 18:45: “If you suffer from fatigue, break it down. In the morning, you could do a two-minute warm-up. There's one very simple warm-up that you can do which is basically moving all your joints, one after the other from the hands to the feet, just moving them around slowly. Then you [could] do five minutes of stretches in the morning. Then later during the day you can do five minutes leg strengthening and core strengthening. Maybe in the afternoon, some upper body strengthening. Then in the evening, I would suggest doing some relaxation. We have to remember that exercise can significantly reduce fatigue levels. It's important to exercise, I think it's important to remember that even 10 minutes makes a difference.” Start slow and go easy on yourself 20:30 “You don't have to run a marathon. Moderate exercise regularly is great. If you can't do 30 minutes, because you are too tired, or because you're in pain, or you've got balance issues, then do 10 minutes. It's better than nothing. And maybe later, you can do another five or 10 minutes to try to break it down, if it's too much in one, go. And remember to adapt to your condition and be flexible. Don't blame yourself [if you can't do as much as you'd like to].” Related Links: Watch the full webinar here Listen to Véronique on S1 Episode 6: The OMS Guide to Getting Fit Try Overcoming MS workouts here Find out more about ‘The Joy of Movement’ by Kelly McGonigal here Listen to the founder of the MS Gym on the Living Well Podcast here Find out more about MS Workouts Find out more about the Johns Hopkins Cooley Center Don’t miss out: Subscribe to this podcast and never miss an episode. You can catch any episode of Living Well with MS here or on your favourite podcast listening app. If you like Living Well with MS, please leave a 5-star review on Apple Podcasts or wherever you tune into the show. Feel free to share your comments and suggestions for future guests and episode topics by emailing podcast@overcomingms.org. Support us: If you enjoy this podcast and want to support the ongoing work of Overcoming MS, you can leave a donation here.

Wednesday Apr 05, 2023

Welcome to Season 5 of Living Well with MS, the Overcoming MS podcast where we explore all topics relating to living well with multiple sclerosis (MS). In this episode, we are pleased to welcome nutrition educators and breathing instructors Annette and Graham Henry!  Keep reading for the key episode takeaways and Annette and Graham’s bio. Make sure you sign up to our newsletter to hear our latest tips and news about living a full and happy life with MS. And if you’re new to Overcoming MS, visit our introductory page to find out more about how we support people with MS. Bio: Graham and Annette Henry are the founders of Henry and Henry, Plant-Based Nutrition Educators and Breathing Re-education Instructors. Their health challenges that led them to become experts Both British, they relocated to Germany in October 2020 and now live in Berlin. They have each resolved their own particular health challenges via a dietary approach. For Annette, this was initially endometriosis, and later on chronic fatigue. For Graham, it was obesity, high blood pressure and elevated cholesterol. Their training as whole food plant-based educators Becoming increasingly aware of the impact of diet on our health, Annette and Graham were motivated to learn more about a nutritional approach to managing and resolving chronic conditions, realizing that this would also have knock-on benefits for planetary health. As a result, they both trained as whole food plant-based educators and now apply their knowledge and passion to not only help others transition successfully to a more plant-based diet as a route to improved health but also as a means of contributing to a more conscious and compassionate world. Becoming certified breathing instructors Annette and Graham recognise that the journey of self-realisation and the key to resolving health issues doesn’t always follow an obvious and linear route and that it requires continual revaluation and adaptation. Thus, when one of them self-diagnosed a breathing issue, realising that diet is only one piece of the puzzle, it prompted them to investigate the science of breathing and how the way we breathe can affect our physical and cognitive health. As a result of their findings, they have now become certified breathing instructors, helping clients to resolve and better manage a range of health conditions and to improve performance. Henry and Henry Annette and Graham run regular events, classes and workshops on whole food, plant-based nutrition and breathing. Further details can be found on their website at https://www.henryandhenryeu.com Key Takeaways: Prebiotics, probiotics and postbiotics “Prebiotics are the fibres that we eat, that we can't actually do anything with, but our gut bacteria can. That's their food and that’s what they thrive on. Probiotics are the healthy gut bugs that we have. So, the prebiotics are for the probiotics (our gut bugs). Then the postbiotics are the byproducts of that nutrition, that the bugs eat, [and] that release all sorts of wonderful chemicals in our body - short-chain fatty acids – which we now know, have so many health benefits. How to transition to a plant-based diet “I would say that taking smallest steps is better for most people, because they can handle that better. It may be a case of changing one meal, making sure your breakfast is plant-based every day or a different meal or whatever [meal you choose], and increasing it [and] looking at swaps.” Breathing for health “The Buteyko Breathing Method is really for dealing with health conditions. If you're breathing incorrectly, then somewhere in your health, things will not work quite as well as they could. It could be more obvious things such as asthma and anxiety. Sleep can be extremely impacted by [breathing incorrectly], as I'm finding out and it’s just starting to get exciting because I am actually finally sleeping a little bit better. [There] are all sorts of other areas too, that you might not imagine, [for example] your posture is impacted by your breathing.” Related links:  Henry and Henry is an Affiliate Organization of Plant Based Health Professionals UK Salus Fatigue Foundation is a non-profit organization which inspires people affected by fatigue to live happy and healthy lives. Listen to Living Well with MS Coffee Break #21 with Friends Reunited cofounder Julie Pankhurst Reach James Nestor’s book Breath Learn about Buteyko Breathing Don’t miss out:  Subscribe to this podcast and never miss an episode. You can catch any episode of Living Well with MS here or on your favourite podcast listening app. If you like Living Well with MS, please leave a 5-star review on Apple Podcasts or wherever you tune into the show. Feel free to share your comments and suggestions for future guests and episode topics by emailing podcast@overcomingms.org. Support us: If you enjoy this podcast and want to support the ongoing work of Overcoming MS, you can leave a donation here. 

Wednesday Mar 15, 2023

Welcome to Season 5 of Living Well with MS, the Overcoming MS podcast where we explore all topics relating to living well with multiple sclerosis (MS). In this episode we are pleased to welcome professional cook and writer, Jack McNulty as our guest! You can submit your questions for Jack anytime by emailing podcast@overcomingms.org. Keep reading for the key episode takeaways and Jack’s bio. Make sure you sign up to our newsletter to hear our latest tips and news about living a full and happy life with multiple sclerosis. And if you’re new to Overcoming MS, visit our introductory page to find out more about how we support people with MS. Bio Jack’s career Jack McNulty has been involved in food and cooking most of his life. He’s walked many paths during his culinary journey, including transforming himself from an interested home cook to a professional chef with classical training. He has worked for talented and knowledgeable chefs in high-end restaurants in Switzerland, Italy, and France. Jack operated his own catering business and cooking school for 15 years, while also finding time to write about cooking. Jack’s current activities include operating myfreshattitude.com – a website dedicated to providing healthy vegan recipes and useful vegan cooking instruction and techniques. He also writes and distributes a weekly international newsletter – VeganWeekly – to inspire people to cook healthy vegan food. Jack and Overcoming MS Jack has followed the Overcoming MS lifestyle since 2009. He has actively worked on providing recipes and information to the Overcoming MS website, was the contributing editor to the Overcoming MS Cookbook, and authored the ‘Eat Well’ chapter in the latest Overcoming Multiple Sclerosis Handbook.   Key Takeaways The Overcoming MS diet will help manage inflammation “If you look at it just purely on the dietary portion of the Overcoming MS program, if you follow the guidelines, it gives you a good chance of - over time - getting back to some sort of base level. And that may take somewhere between five and seven years for a lot of people. I know it did for me, it was around seven years before all my symptoms just vanished. The goal is to promote health in your body. So, [if] you want to decrease inflammation, you want to ingest foods that are going to play a role in decreasing inflammation.” It’s helpful to research restaurant menus ahead of dining out “If I'm going to a place I've not been, I turn to the internet first to see if there is a menu online. Maybe by looking online, you're just already going to say, ‘well there's only one thing I can have on this menu’ and that might not be good enough. But it's also possible that there are some possibilities here and you have some questions already in mind before you even get to the restaurant that you could ask the server.” Don’t stress if you eat something by accident/not by choice when eating out “Over the years, having an experience like that [eating something by accident/not by choice when eating out] is not going to have a huge impact. Now, having said that, I think it's probably not a good idea to just say, well, it's accepted because Jack just said so. I'm not saying that at all. I'm just saying that sometimes those things come up and it's better to just not stress about them and then just go ahead and enjoy it and move on. And next day, be twice as healthy.” Make sure you sign up to our newsletter to hear our latest tips and news about living a full and happy life with MS. Related Links:  Read  the Overcoming MS Handbook Download the Overcoming MS Chef cards Listen to previous “Ask Jack” episodes S3E34, S3E35, S3E38, S3E41, E3E48, S4E51, S4E53, S4E65 Don’t miss out:  Subscribe to this podcast and never miss an episode. You can catch any episode of Living Well with MS here or on your favourite podcast listening app. If you like Living Well with MS, please leave a 5-star review on Apple Podcasts or wherever you tune into the show. Feel free to share your comments and suggestions for future guests and episode topics by emailing podcast@overcomingms.org. Support us: If you enjoy this podcast and want to support the ongoing work of Overcoming MS, you can leave a donation here.

Wednesday Mar 08, 2023

Welcome to Season 5 of Living Well with MS, the Overcoming MS podcast where we explore all topics relating to living well with multiple sclerosis (MS). In this episode, we are sharing the highlights from our ‘Family friendly Foods’ webinar with Nutritional Therapist Sam Josephs. In this episode, Sam shares how to incorporate easy, family-friendly Overcoming MS recipe ideas into your everyday life and social gatherings. This webinar was recorded in June 2022 as part of our Finding Hope with Overcoming MS webinar series. You can watch the whole webinar here or the podcast highlights on YouTube here. Keep reading for the key episode takeaways and Sam’s bio.  Make sure you sign up to our newsletter to hear our latest tips and news about living a full and happy life with multiple sclerosis. And if you’re new to Overcoming MS, visit our introductory page to find out more about how we support people with MS. Bio: Sam Josephs believes passionately in diet and lifestyle intervention as a powerful preventative approach to all chronic health conditions, including MS.  Sam’s qualifications and career Since graduating from BCNH (UK College of Nutrition and Health) in 2008, Sam has been working in her North London clinic seeing clients on a 1-2-1 basis. She has also worked as a pastoral and clinical tutor for BCNH, and appears annually as a guest lecturer at both BCNH and the Institute of Optimum Nutrition, training upcoming nutritional therapy students in a variety of conditions, including MS. She has presented to many MS support groups, was an expert panelist at the MSLife Expo in 2016 and has worked as a retreat facilitator for Overcoming Multiple Sclerosis. She is a fully qualified Nutritional Therapist, a full member of the British Association for Nutrition and Lifestyle Medicine (BANT) and is also registered with the Complementary and Natural Healthcare Council (CNHC) – the only register for Nutritional Therapy recognized by the Department of Health. Sam’s personal life Her husband was diagnosed with Multiple Sclerosis in 2002 which has shaped the direction of Sam’s career and gives her the compassion and unique hands-on knowledge to support so many others with the condition. Above all else, Sam enjoys nothing more than a trip to the Farmer’s Market, or a good greengrocer and is a keen and experimental cook for her family and friends. Key Takeaways: Making your own veggie burgers is easier than you think “A lot of store-bought meat substitutes contain a long list of ingredients or the cheap oils like palm oil. But they are pretty easy to make yourself. Essentially all you're doing is rinsing a can of beans, adding some dried oats, or some leftover cooked rice from the day before, or a chunk of bread which you can toast if it's maybe a bit stale and blitz it up into breadcrumbs. Maybe add an egg white, and then just put loads of herbs and seasonings and flavors in it. And if you just mix it all up together in a blender, then it will make some really nice patties.” Healthy snack dips are easy and delicious   “Dips are a great thing to have in the fridge for sandwich breads, picnics, but also when the kids get home from school. Rather than KitKats and crisps, they could just grab a carrot and stick it into a nice dip. It's essentially just using a dollop of soy yogurt, either blended up with a tin of fish (smoked mackerel works really well) or a tin of beans and blitz it all up together with a handheld mixer, and presto, it's a dip!” Children take family eating habits with them into adulthood “If we make those changes, and we set them in stone at home in the family, when the kids grow up and live alone, and go off to college or get [their] first job, [they’ll take those healthy habits with them.] So switch things like white bread to brown, try to switch white rice to brown or whole grain cereals, switch out from something like Frosties every day, to having porridge once a week, or a nice muesli once a week, just changing the routine [can make a difference for them].” Related Links:  Listen to Sam’s previous episodes of Living Well with MS:  o   S1 Episode 3: The OMS Diet in a Nutshell (Part 1) o   S1 Episode 4: The OMS Diet in a Nutshell (Part 2) Watch the original Webinar recording here   Don’t miss out:  Subscribe to this podcast and never miss an episode. You can catch any episode of Living Well with MS here or on your favourite podcast listening app. If you like Living Well with MS, please leave a 5-star review on Apple Podcasts or wherever you tune into the show. Feel free to share your comments and suggestions for future guests and episode topics by emailing podcast@overcomingms.org. Make sure you sign up to our newsletter to hear our latest tips and news about living a full and happy life with MS. Support us If you enjoy this podcast and want to support the ongoing work of Overcoming MS, you can leave a donation here.

Wednesday Mar 01, 2023

Welcome to Season 5 of Living Well with MS, the Overcoming MS podcast where we explore all topics relating to living well with multiple sclerosis (MS). In this episode we are pleased to welcome Steve Hendricks, the author of The Oldest Cure in the World: Adventures in the Art and Science of Fasting as our guest!   Keep reading for the key episode takeaways and Steve's bio.  Make sure you sign up to our newsletter to hear our latest tips and news about living a full and happy life with MS. And if you’re new to Overcoming MS, visit our introductory page to find out more about how we support people with MS.  Content Warning: This episode mentions a study involving data on attempted suicide. If you are having thoughts of self-harm, please reach out to someone. Find a list of hotlines here. Overcoming MS has a mental health hub with resources for managing anxiety, uncertainty and stress.   Bio:  Steve’s career: Steve Hendricks is a freelance reporter and the author of the new book The Oldest Cure in the World: Adventures in the Art and Science of Fasting. He’s also the author of two previous books, one of which, The Unquiet Grave: The FBI and the Struggle for the Soul of Indian Country, made several best-of-the-year lists. He has a website with information about his books and an extensive list of FAQs about fasting.  Steve's personal life:He lives in Boulder, Colorado (USA), with his wife – a  professor of family law – and  his dog, a border collie cross.     Key Takeaways:   A longer daily fasting period helps our body make repairs and reduce leaky gut syndrome  13:38 “The longer we give our bodies each night to do all this work, the better it does them. If we narrow our fasting window too much, our body will not be able to make these repairs. Chronobiologists biologists, who study the timing of our bodies, think that it's highly likely that our long eating windows and narrow fasting windows each night are one of the contributors, in addition to our cr@ppy diet, to leaky gut syndrome.”    Clinical observations have shown fasting can improve many conditions, including MS!  24:36 “We have more than a century of clinical observations from fasting doctors, across multiple generations [and] multiple countries, (mostly in the US, Germany, Russia) who report very credibly many cases of reversals of cardiovascular disease through prolonged fasting. I'm talking fasting for a week, two weeks, sometimes up to 30-40 days, depending upon the condition. Cardiovascular disease, type two diabetes, skin diseases like psoriasis and eczema and acne, asthma, allergies. It's a very long list. Fasting doctors routinely report that prolonged fasting is good for autoimmune diseases.”    Research into the benefits of fasting for people with MS is very promising  50:00 “Valter Longo found that fast mimicking diet cycles not only prevented the demyelination and damage to the axons in mice – which  are the parts of the nerve that conduct impulses – but  also began to remyelinate some of the stripped off myelination on those same parts of the nerves. In consequence, the mice did better on motor tests, they did better on mental tests. And here's the sleeper headline: 20% of these mice appear to have been cured. All their symptoms were gone. So, a pretty moderate amount of fasting cures MS in mice.”   To hear our latest tips and news about living a full and healthy life with MS, make sure you sign up to our newsletter   Related Links:   Visit Steve Hendricks’ website SteveHendricks.org   Buy ‘The Oldest Cure in the World’ from Bookshop.org or Hive.co.uk Read Steve’s article ‘Starving Your Way to Vigor’ in Harper’s Magazine on fasting here: https://harpers.org/archive/2012/03/starving-your-way-to-vigor/ Find out more about Michael Mosely’s 5:2 diet: https://thefastdiet.co.uk/ Read the Buchinger Wilhelmi fasting clinic interview with Francois Wilhelmi de Toledo here: https://www.buchinger-wilhelmi.com/en/interview-winterson-and-francoise-wilhelmi-de-toledo/ Listen to Valter Longo on Living Well with MS here: https://overcomingms.org/resource/podcast/s2-episode-15   Don’t miss out:    Subscribe to this podcast and never miss an episode. You can catch any episode of Living Well with MS here or on your favourite podcast listening app. If you like Living Well with MS, please leave a 5-star review on Apple Podcasts or wherever you tune into the show. Feel free to share your comments and suggestions for future guests and episode topics by emailing podcast@overcomingms.org.   Support us:    If you enjoy this podcast and want to support the ongoing work of Overcoming MS, you can leave a donation here.

Wednesday Feb 15, 2023

Welcome to Season 5 of Living Well with MS, the Overcoming MS podcast where we explore topics relating to living well with multiple sclerosis (MS). In this episode, we are pleased to welcome Renee Coffey as our guest. Renee has been following the Overcoming MS Program for over 10 years. She talks about her Overcoming MS journey, her story that was published in the ‘Overcoming MS Handbook’, and her advice to those just starting out on the Program.   Keep reading for the key episode takeaways and Renee’s bio.  Make sure you sign up to our newsletter to hear our latest tips and news about living a full and happy life with multiple sclerosis. And if you’re new to Overcoming MS, visit our introductory page to find out more about how we support people with MS.  Bio:   Renee started on her Overcoming MS journey shortly after her first MS episode in 2011 so has been following the Overcoming MS program for over 10 years.   Renee’s career and personal life In her day job, Renee works full-time as the Deputy CEO of the Australian Indigenous Education Foundation, a role and cause she cares deeply about. Renee is mum to two boys, aged 7 and 9 and gets to share two older children with her partner Jason - wonderful young women aged 20 and 21.  Renee’s lesions have disappeared and/or shrunk Three years ago, following a routine MRI, Renee was told there was no disease progression. Also, one of the lesions on her spine had disappeared, and one had shrunk to just millimetres. Last year, Renee received the great news. Not only is there no new disease activity, but now the two lesions in her brain have disappeared as well.   Renee’s passion for Overcoming MS Renee is passionate about her Overcoming MS journey and credits her good health and so much of the richness she experiences in her life to the Overcoming MS program and community.  Key Takeaways:   MS Symptoms are varied and sometimes confusing, mimicking other conditions “The itching was across one of those bands around my torso, on one side. My GP clued up on to that pretty quickly. Once he tried a few things, and that didn't work, he actually gave me a referral to a neurologist, which for me was quite surprising because I thought I had been bitten by a spider. Then, I started thinking maybe I had shingles or something like that. As far as I knew, a neurologist was just for your brain, so I was thinking, ‘hang on a second, that seems like an odd referral.’ But I googled the neurologist and he was a specialist in MS.”  Following the Overcoming MS Program will improve your overall health and wellbeing “The Overcoming MS program has brought so much more to me than the absence of decline. I actually think it has brought a lot of richness to me, by way of just changing my outlook on my health and my wellbeing and putting that at the front and centre of what I do. I am definitely a much healthier person now, in a holistic sense, than I was before my diagnosis. I love the way I eat. If you told me tomorrow that I could take a magic pill and you'll cure my MS, I would not be running straight to a cheese platter or digging into a steak. I couldn't think of anything worse.”  Renee hiked part of the Camino de Santiago (an ancient Pilgrim route through Europe) with her family “If you had told me 10-plus years ago that I was even going to want a hike 215 kilometres, I wouldn't have believed you. But I think that's part of this change. I never played team sports before my MS diagnosis, I never had any level of fitness or any interest in any kind of fitness activity or outdoor activities. And so that's all come from this much healthier view on holistic health.”  To hear our latest tips and news about living a full and happy life with MS, like Renee has done, make sure you sign up to our newsletter   Related Links:  Read the Overcoming MS Handbook   Read more about how to prevent MS in family members  You can hike part of the Camino de Santiago while fundraising for Overcoming MS   Don’t miss out:  Subscribe to this podcast and never miss an episode. You can catch any episode of Living Well with MS here or on your favourite podcast listening app. If you like Living Well with MS, please leave a 5-star review on Apple Podcasts or wherever you tune into the show. Feel free to share your comments and suggestions for future guests and episode topics by emailing podcast@overcomingms.org.  Support us:  If you enjoy this podcast and want to support the ongoing work of Overcoming MS, you can leave a donation here. 

Wednesday Feb 08, 2023

Welcome to Living Well with MS, the Overcoming MS podcast where we explore all topics relating to living well with multiple sclerosis (MS). In this episode, we are sharing the highlights from one of our ‘Ask Aaron’ webinars, where neurologist, Dr. Aaron Boster, answers questions about MS from the community. Dr. Boster covers a range of fascinating topics such as fasting, menopause and gut health.  This webinar was recorded in March 2022 as part of our Finding Hope with Overcoming MS webinar series. You can watch the whole webinar here or the podcast highlights on YouTube here.  Keep reading for the key episode takeaways and Dr Boster’s bio. Keep in touch: Make sure you sign up to our newsletter to hear our latest tips and news about living a full and happy life with MS. And if you’re new to Overcoming MS, visit our introductory page to find out more about how we support people with MS.    Dr. Aaron Boster’s Bio:   Dr. Aaron Boster is an award-winning, widely published, and board-certified neurologist specialising in multiple sclerosis (MS) and related CNS inflammatory disorders. He currently serves as the Director of the Neuroscience Infusion Center at OhioHealth.   Why Dr. Boster chose to become a specialist in MS  Witnessing his uncle’s diagnosis with MS when he was 12, he and his family came to see a lack of coherence in the way MS was treated at the time. That experience informed Dr. Boster’s drive to do things differently.   Dr. Boster’s career   At OhioHealth, he spearheads a revolutionary model in MS treatment and patient care drawing on interdisciplinary resources and putting patients and families first. Dr. Boster is also an Adjunct Assistant Professor of Neurology at Ohio University Heritage College of Osteopathic Medicine, and a former Assistant Professor of Neurology at The Ohio State University, where he also formerly headed the Neuroimmunology division.   Dr. Boster has been intimately involved in the care of people impacted by MS; he has been a principal investigator in numerous clinical trials, trained multiple MS doctors and nurse practitioners, and has been published extensively in medical journals. He lectures to both patients and providers worldwide with a mission to educate, energise and empower people impacted by MS.   Dr. Boster’s education and personal life  Dr. Boster grew up in Columbus, Ohio and attended undergraduate at Oberlin College. He earned his MD at the University of Cincinnati College of Medicine and completed an internship in Internal Medicine and Residency in Neurology at the University of Michigan, followed by a two-year fellowship in Clinical Neuroimmunology at Wayne State University.   He lives in Columbus, Ohio with his wife, Krissy, son Maxwell, and daughter Betty Mae.    Selected Key Takeaways: Embracing exercise is an important step to improve outcomes for MS “I would encourage the entire family to embrace exercise, when it's nice outside, you go for a walk and kayaking and canoeing and what have you. We have excellent data that people impacted by MS who exercise as part of their lifestyle end up less disabled at the end of their life as compared to they didn't. And so we want to help instil those important, very, very important behaviours in a young person as early as possible.”  Intermittent Fasting is recommended and is safe for MS  “Within the last year, I've become very interested in not just what PwMS eat, but when they eat. When they eat turns out to matter. It's my opinion that intermittent fasting specifically is a bio-hack, not just for people impacted by MS,but for [all] humans. And it's my opinion that intermittent fasting is very safe in the setting of MS.”   What to consider when thinking about alternative medicine  “When someone wants to consider alternative medicine, which I will define as something that I was not taught in medical school, it doesn't make it good or bad. It just means I wasn't taught about it. An example might be acupuncture. I was not trained in acupuncture, which doesn't mean it's not real. It just means I don't know much about it. So, when I'm presented with something that is alternative, then I'm okay with it as long as three rules are met. The first one is it can't be too expensive. ... The second thing is it can't be dangerous. ... And [the] third is it can't be instead of something that I know works.”   Related Links:  Dr. Boster was on three previous Living Well with MS episodes: S1E11: Making the Right Medication Choices   S2E17: Lifestyle Choices and their Impact on MS    S3E43: Let’s Talk About (and MS) Check out Dr. Boster’s popular YouTube channel covering all aspects of MS.    Don’t miss out:   Subscribe to this podcast and never miss an episode. You can catch any episode of Living Well with MS here or on your favourite podcast listening app. If you like Living Well with MS, please leave a 5-star review on Apple Podcasts or wherever you tune into the show. Feel free to share your comments and suggestions for future guests and episode topics by  emailing podcast@overcomingms.org. Make sure you sign up to our newsletter to hear our latest tips and news about living a full and happy life with MS.    Support us:  If you enjoy this podcast and want to support the ongoing work of Overcoming MS, you can leave a donation here. 

Wednesday Feb 01, 2023

Welcome to Living Well with MS, the Overcoming MS podcast where we explore all topics relating to living well with multiple sclerosis (MS). In this episode, Geoff meets MS and disability activist, Roxy Murray.  Keep reading for the key episode takeaways and bio. You can also watch this episode on our YouTube channel here. Make sure you sign up to our newsletter to hear our latest tips and news about living a full and happy life with MS. And if you’re new to Overcoming MS, visit our introductory page to find out more about how we support people with MS. Roxy Murray’s bio: If you're keen on driving inclusivity, Roxy's story will be of interest to you. Roxy Murray (@multiplesclerosisfashionista) is a London (UK) based MS and disability, and body positivity and activist. She is also a podcaster, voiceover artist, fashion stylist and the designer of sick and sickening (@sickandsickening) clothing, a brand created to celebrate disabled and invisible illness warriors. She focuses her attention on creating better representation, consideration and inclusion within the MS narrative for people of colour and the LGBTQIA Community. Roxy’s Social Media Through her social media, Roxy combines her love of fashion and art to empower others on their journey, whilst they navigate through life with a disability or invisible illness. She creates videos and Instagram content that celebrates and brings visibility to the beauty of the community with her hashtag #WeAreNotInvisible. She also focuses her attention on helping others take steps to release grief and openly talk about her own mental health battles. Roxy’s podcast She highlights real unfiltered stories and talks about taboo subjects like disabled joy, sexual empowerment and much more on her podcast (@sickandsickening_podcast). Selected Key Takeaways Accessible fashion is adaptable, so that it suits every body, every shape, and every person’s needs Sometimes that might be an adaptable sleeve, it might be magnetic fastening. Jewellery is a big one for me, I find it really hard to clip in the little clips around the neck. You can get ones [fastenings] that are just magnetic so it's easier to pull on and push off for someone that wants to be chic and fashionable and look good, but they want to be able to dress themselves. Then Barbara Met Allen is a new TV show chronicling the UK’s disability rights movement It's more inclusive it's more accessible and people that are disabled are being allowed to tell [their] own stories, which is really special. So, you have a story of when Barbara met Allen and together, after the disability rights generation movement in America, it came over here. They were looking for their own accessibility revolution. There’s no need to desexualize disabled bodies I'm a 34-year-old, unapologetic Aries. I'm going to stand up, be proud and look fabulous. I've literally walked a runway show with a mobility aid, and was like, “I'm going to wear underwear and be fabulous and show people we can be disabled and be sexual and be good and curious and gorgeous”. Related Links: Connect with Roxy on Instagram Roxy's podcast: Sick and Sickening on Apple Podcasts Myelin & Melanin podcast: myelinandmelanin.com Alinker walking bike: www.thealinker.com/ Unhidden Clothing: unhiddenclothing.com/ Watch 'Then Barbara Met Allen' on Netflix: www.netflix.com/gb/title/81406123 The ADAMS study: app.mantal.co.uk/adams Listen to our podcast with Mitzi Joi Willams: S4 Episode 50 Find out more about Dominic Shadbolt’s The MS Guide: dominicshadbolt.com/ Watch Education on Netflix: www.netflix.com/gb/title/80197526 Hot Octopus adaptable toys: www.hotoctopuss.com/uk/en/ Listen to our podcast with Aaron Boster on MS and : S3 Episode 43 Follow Dave Walsh: www.instagram.com/sitting_bull_uk Follow Yazzie: www.instagram.com/yazzietalks/ MS Together www.mstogether.org/ Don’t miss out:  Subscribe to this podcast and never miss an episode. You can catch any episode of Living Well with MS here or on your favourite podcast listening app. If you like Living Well with MS, please leave a 5-star review on Apple Podcasts or wherever you tune into the show. Feel free to share your comments and suggestions for future guests and episode topics by emailing podcast@overcomingms.org. Make sure you sign up to our newsletter to hear our latest tips and news about living a full and happy life with MS. If you enjoy this podcast and want to support the ongoing work of Overcoming MS, you can leave a donation here.

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